Patients Know Best
Patients Know Best (PKB) is Europe’s largest personal health record (PHR) platform.
We put patients in control of their medical records so that everyone benefits, including clinicians, researchers and charities. We are also a social enterprise, and our mission is that patients know best.
We achieve this by each person:
1. Owning a copy of all health information about them
2. Understanding what this information means
3. Using this understanding to make a shared decision with family and professionals
By connecting information from primary, secondary, social and mental health care providers, it creates a single copy of a patients data.
The person owns all health data in his or her PKB account. Control over access to the data is legally enforced through this ownership and technically enforced through encryption. No one can decrypt these health data without the permission of the person.
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PUG 2021 - Pathology Results into PKB - Dr John Laurie and Susan Harman, University Hospitals Sussex
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