Organization for Rare Diseases India - ORDI

2:17:58

ESTABLISH STANDARD OF CARE (SOC) FOR SPINAL MUSCULAR ATROPHY(SMA) | Recorded Video | ORDI

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1:18

Newborn & High-Risk Pregnancy Screening | Karnataka Government | Hunting Disease

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1:02

Stickler Syndrome Awareness Month | Organization for Rare Disease in India | ORDI

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1:10

Infantile Systemic Hyalinosis | Rare Disease | Organization For Rare Disease in India | Karnataka

Organization for Rare Diseases India - ORDI

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0:52

Goldenhar Syndrome | Rare Craniofacial Disease | ORDI | Organization for Rare Disease #ORDI

Organization for Rare Diseases India - ORDI

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1:17

Understanding Fragile X Syndrome | ORDI | Rare Disease Organization in India #fragilex

Organization for Rare Diseases India - ORDI

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1:34:56

Paediatric Neuromuscular Disorders S-23

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1:26:30

Paediatric Neuromuscular Disorders Session -22

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1:20

𝐖𝐨𝐫𝐥𝐝 𝐌𝐒 𝐃𝐚𝐲: 𝐌𝐲 𝐉𝐨𝐮𝐫𝐧𝐞𝐲 𝐰𝐢𝐭𝐡 𝐌𝐮𝐥𝐭𝐢𝐩𝐥𝐞 𝐒𝐜𝐥𝐞𝐫𝐨𝐬𝐢𝐬 - 𝐒𝐡𝐮𝐛𝐡𝐫𝐚 𝐑𝐚𝐣𝐩𝐮𝐭

Organization for Rare Diseases India - ORDI

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1:03:46

Neuromuscular Disorders Session 19

Organization for Rare Diseases India - ORDI

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1:10:11

Neuromuscular Disorders Session 18

Organization for Rare Diseases India - ORDI

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1:12:36

Neuromuscular Disorders Session 20

Organization for Rare Diseases India - ORDI

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1:05:08

Neuromuscular Disorders Session 21

Organization for Rare Diseases India - ORDI

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1:20:54

Neuromuscular Disorders Session 16

Organization for Rare Diseases India - ORDI

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1:12:08

Neuromuscular Disorders Session 17

Organization for Rare Diseases India - ORDI

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0:29

𝐓𝐞𝐚𝐦 𝐒𝐚𝐧𝐨𝐟𝐢 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

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9:32

𝐔𝐧𝐝𝐞𝐫𝐬𝐭𝐚𝐧𝐝𝐢𝐧𝐠 𝐒𝐩𝐢𝐧𝐚𝐥 𝐌𝐮𝐬𝐜𝐮𝐥𝐚𝐫 𝐀𝐭𝐫𝐨𝐩𝐡𝐲: 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬 𝐟𝐫𝐨𝐦 𝐃𝐫. 𝐃𝐞𝐞𝐩𝐚 𝐁𝐡𝐚𝐭

Organization for Rare Diseases India - ORDI

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0:29

𝐃𝐫. 𝐀𝐧𝐧 𝐀𝐠𝐧𝐞𝐬 𝐌𝐚𝐭𝐡𝐞𝐰 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

Organization for Rare Diseases India - ORDI

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8:40

𝐀𝐝𝐯𝐚𝐧𝐜𝐢𝐧𝐠 𝐒𝐌𝐀 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬: 𝐃𝐫. 𝐕𝐲𝐤𝐮𝐧𝐭𝐚 𝐑𝐚𝐣𝐮 𝐄𝐦𝐛𝐫𝐚𝐜𝐞𝐬 𝐓𝐞𝐜𝐡 𝐌𝐞𝐝𝐢𝐜𝐢𝐧𝐞

Organization for Rare Diseases India - ORDI

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3:19

𝐒𝐌𝐀 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 & 𝐂𝐮𝐦𝐮𝐥𝐚𝐭𝐢𝐯𝐞 𝐎𝐫𝐚𝐥 𝐓𝐡𝐞𝐫𝐚𝐩𝐲: 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬 𝐟𝐫𝐨𝐦 𝐃𝐫. 𝐀𝐧𝐧 𝐀𝐠𝐧𝐞𝐬 𝐌𝐚𝐭𝐡𝐞𝐰

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2:13

𝐁𝐫𝐞𝐚𝐤𝐢𝐧𝐠 𝐁𝐚𝐫𝐫𝐢𝐞𝐫𝐬: 𝐑𝐮𝐜𝐡𝐢𝐭𝐚 𝐒𝐚𝐡𝐮𝐤𝐚𝐫𝐢'𝐬 𝐉𝐨𝐮𝐫𝐧𝐞𝐲 𝐰𝐢𝐭𝐡 𝐎𝐬𝐭𝐞𝐨𝐠𝐞𝐧𝐞𝐬𝐢𝐬 𝐈𝐦𝐩𝐞𝐫𝐟𝐞𝐜𝐭𝐚

Organization for Rare Diseases India - ORDI

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0:45

𝐁𝐫𝐢𝐭𝐭𝐥𝐞 𝐁𝐨𝐧𝐞𝐬, 𝐔𝐧𝐛𝐫𝐞𝐚𝐤𝐚𝐛𝐥𝐞 𝐒𝐩𝐢𝐫𝐢𝐭: 𝐃𝐡𝐚𝐧𝐲𝐚 𝐑𝐚𝐯𝐢 𝐂𝐡𝐚𝐦𝐩𝐢𝐨𝐧𝐬 𝐖𝐢𝐬𝐡𝐛𝐨𝐧𝐞 𝐃𝐚𝐲 𝐰𝐢𝐭𝐡 𝐂𝐚𝐥𝐥 𝐭𝐨 𝐀𝐜𝐭𝐢𝐨𝐧

Organization for Rare Diseases India - ORDI

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0:40

𝐓𝐞𝐚𝐦 𝐨𝐟 𝐈𝐐𝐕𝐈𝐀 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

Organization for Rare Diseases India - ORDI

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0:36

𝐃𝐫. 𝐌𝐞𝐞𝐧𝐚𝐤𝐬𝐡𝐢 𝐁𝐡𝐚𝐭 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

Organization for Rare Diseases India - ORDI

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0:43

𝐃𝐫. 𝐒𝐚𝐧𝐣𝐞𝐞𝐯𝐚 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

Organization for Rare Diseases India - ORDI

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0:39

𝐈𝐥𝐥𝐮𝐦𝐢𝐧𝐚𝐭𝐢𝐧𝐠 𝐇𝐨𝐩𝐞: 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬 𝐂𝐞𝐥𝐞𝐛𝐫𝐚𝐭𝐞 𝐎𝐑𝐃𝐈'𝐬 𝟏𝟎𝐭𝐡 𝐀𝐧𝐧𝐢𝐯𝐞𝐫𝐬𝐚𝐫𝐲 & 𝐃𝐍𝐀 𝐃𝐚𝐲

Organization for Rare Diseases India - ORDI

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10:45

𝐃𝐞𝐞𝐤𝐬𝐡𝐚'𝐬 𝐒𝐭𝐨𝐫𝐲: 𝐎𝐯𝐞𝐫𝐜𝐨𝐦𝐢𝐧𝐠 𝐒𝐌𝐀 𝐓𝐲𝐩𝐞 𝟐 𝐰𝐢𝐭𝐡 𝐎𝐑𝐃𝐈 𝐒𝐮𝐩𝐩𝐨𝐫𝐭

Organization for Rare Diseases India - ORDI

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6:28

𝐒𝐡𝐫𝐞𝐞𝐧𝐢𝐤𝐞𝐭𝐡𝐚𝐧 𝐍𝐞𝐞𝐝𝐬 𝐚 𝐌𝐢𝐫𝐚𝐜𝐥𝐞: 𝐇𝐨𝐩𝐞 𝐟𝐨𝐫 𝐚 𝐭𝐫𝐞𝐚𝐭𝐦𝐞𝐧𝐭 𝐰𝐢𝐭𝐡 𝐎𝐑𝐃𝐈 𝐒𝐮𝐩𝐩𝐨𝐫𝐭

Organization for Rare Diseases India - ORDI

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1:12:36

Paediatric Neuromuscular Session - 20

Organization for Rare Diseases India - ORDI

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2:12

Our fight against SMA: Jeevan's story & Hope with ORDI's Support

Organization for Rare Diseases India - ORDI

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